Ten ER Visits and Nine Specialists Later. I Wasn’t Crazy.

Ten ER Visits and Nine Specialists Later. I Wasn’t Crazy.


was kind of a mystery because it came
back and through research I figured out why I figured out why it had
disappeared The intention of this video is
about certain issues from my personal experience. This video is for entertainment purposes only it’s not in any way intended as medical advice. What you do with any information herein is 100% your responsibility. It all began at the end of July when I
got the sudden urge to finish some projects. Literally the next day began
back-to-back suffering with allergic reactions. You’re on round-the-clock antihistamines
just so that you don’t go into anaphylactic shock and I had no idea
where the reaction was coming from. So I thought it was from the house because I
was so careful with everything that I was eating I thought that the food
allergies were under control but I found myself ripping my hands apart almost
every night scratching. The cuts and the oozing on the hands became so bad I
couldn’t even move my fingers the joints had hardened to something called the
lichenification. It’s when the oozing and the blood dry and the skin thickens so the
skin can finally heal. The air was so painful so I wear nitrile gloves and take
antihistamines around the clock. There were moments where I literally felt out
of my body like I wasn’t even a part of me. As some of you might have seen
from the really angry video that I posted but keep in mind anger is a major
side effect whatever was going on in my body whatever was going on in my system
people can say all they want that that’s not an excuse but ask that to somebody
brain disease ask that to someone with Alzheimer’s or Parkinson’s. When something affects the brain that
greatly a person does not have control over the way they’re thinking or
the things they are saying or the reactions they might have to situations
that might normally be manageable. That might normally be something that they would be
patient with. Allergic reactions affect the brain and body systems in ways
many doctors do not yet fully understand. To say Amy’s life has been restricted
would be an understatement. She’s severely brain damaged unable to speak
or control her limbs this is the shocking reality of what having a severe
food allergy can do. Total devastation and from our point of view Amy was such a
vivacious, outgoing person. Her father remembers how she used to be
a successful TV producer with a high-flying career but four years ago
while on holiday in Budapest she ate a restaurant meal that she was
told didn’t contain nuts. It did. She went into anaphylactic shock and had a
cardiac arrest. In Budapest she goes away for that weekend with her girlfriends
and she goes to this restaurant, “will you have stuff that you can serve me?” okay
“Yeah, yeah, yeah, not a problem not a problem.” And she showed an allergy card in Hungarian. Yes. Which I
think is very important Everywhere Amy went she carried her Epi-Pen. Whatever country…
And her Epi-Pen she had with her…everything needed for an allergic reaction. And the restaurant informed the
chef who asked what she would like to eat and she picked a chicken dish with
rice and again they said this dish has no nuts it’s not cooked in anything with
nut oil it would be fine and she had purchased one mouthful and immediately
felt her throat tightening and went into major anaphylactic shock. And we can see
her reacting to that. Yeah she does remember. We must say to people that Amy
can understand everything we’re saying here. Yes, she can. But obviously she finds it very
very difficult. That’s right Ruth, yes. So we just you know want to look include her
in this but obviously she can’t answer the questions. No, that’s why I’m doing it for you, Amy. “Yeah.” The thing is the the chicken must have been basted in was it a pesto
sauce? Well it was either pesto or maybe cooked in peanut oil. They told us that
it hadn’t been but after she administered two epi
pens and I think that’s really important.. TWO EpiPens administered and they didn’t
contain it because it was such a severe reaction and she went into anaphylactic
shock. She died Roger. For six minutes. The main damage before she was
resuscitated we didn’t know what to expect they didn’t actually think that
she would survive the week. They gave her a 30% chance of actually
getting through that week. This, this issue of people being allowed nuts and peanuts on some
people on planes…could literally could somebody open a bag of peanuts near
somebody who’s got an allergy as severe as Amy’s and literally just breathing in…but you see also remember the airs are circulated in a plane. Yes. Yes. So people say well you know
they’re not eating them they aren’t eating them near somebody. That’s right …. in the studio right
now somebody across the studio could open a packet of nuts and just the
particles that go into the air if Amy was to inhale that that could set off
this type of reaction. I can vouch for that when I was really little when I was
about five six years old I used to go back and forth between Virginia and New
York because my father still lived in Virginia and I would see my grandparents
and go with my mom to New York since peanuts were allowed on the planes at
the time I would break out in severe hives because the whole plane smelled
like peanuts so at the time I mean we didn’t know that it was gonna be a
severe reaction you know from inhaling but from inhaling for me I would get
severe hives so within about I would say like 15 minutes of people eating the
peanuts and the air circulation I would take a Benadryl and be knocked out for
the entire flight but I remember that I used to actually have to take the
benadryl during the flight because of the peanuts in the air and the the hives
that it would cause and then of course once we got to New York I was battling
hives for at least another day or two sometimes longer Amy I know you’re
listening to all this so we’ve been asking people you know should you be
allowed nuts on planes that would be very very dangerous for somebody like
you or somebody with your reaction what do you think? Should nuts be allowed on
planes? That’s no. That’s no. Definitely not. Looking at me like the way I am right now most people wouldn’t see anything
health-wise wrong. Who I am when I’m sick is not who I am when I’m healthy on an
emotional level a psychological level and a physical level. All three of those..
your thoughts change, your face looks different.. you know there’s a lot of
things that are different. So I knew that my food allergy is pretty intense
and it’s not something that I really talked about because you know I was a
big believer in what we focused our energy on we attract right I realized
that I was completely neglecting the very thing that was going to allow me to
do everything that I’ve ever wanted. You know you can’t just keep pushing forward
and keep going forward doing the things that you got to do without looking at
your health. The concentration levels when you’re editing is like non-existent
when you’re going through reaction I get so tired you literally have to stop or
just try to get better. And it’s something that I really really learned
during this entire experience is that if you don’t have your health you have
nothing it’s not about getting that project done it’s not about being there
because you have to be, no. Your health is your life. And so I had some
experiences during this time that I would not wish on anyone if I can help
ease one person’s suffering out there for not having to go through what I
went through, then I’ve done what I had to do. I had spent such a long time
isolating myself over the past two years and not intentionally. It was like I just
wasn’t living the way I used to… because there was a slow progression of symptoms
that I didn’t fully understand until after I recognized the patterns.
I wasn’t conversing with people the way I used to.
I couldn’t understand people the way I used to. You know here I was with these
symptoms of convergence insufficiency and auditory processing disorder and
here I thought, “Okay, maybe it’s Asperger’s..” because I would get these
notifications on my phone for different videos that would show up out of nowhere
on Asperger’s and I was like hmm, that’s interesting because a lot of the
symptoms seemed similar to one or two family members. So I was like, hmm, so if I’m if I’m pointing the finger at someone else the first thing I do is look at me
it’s it’s just the way I am ever since all of the spiritual work that I’ve done
I don’t point without looking at myself first so I looked at myself and I was
like wow like I seem to have a lot of these symptoms do I have Asperger’s I
don’t know I had been to therapists before I had been to psychiatrists
several years ago it started with severe severe depression and there were maybe
like two or three times a year where I would get these severe panic attacks and
I couldn’t understand why they weren’t really triggered by anything and they
just seemed to pop up out of nowhere so for awhile I actually thought that
those panic attacks were due to spirits or spirit activity and I realized that
panic attacks and anxiety can absolutely be tied to spirit activity however the
way that you handle the anxiety or panic that comes up has everything to do with
how well your brain is working. Is your brain having brain fog from allergies? Is
your brain having weird neurological symptoms from severe allergies? okay
these are things that I hadn’t really considered in the past you know I knew
that allergies affected the brain I knew that they made me tired I knew that they
did cause depression at certain points right but I knew after the work that I
had done with the spiritual work I knew that I was definitely not depressed I
didn’t want to die at all I loved my life even though from the outside
looking in you know you see some of the things that I tell you guys stories about you’re like oh my god like how could how could
she handle that but you realize also that I’ve lived with it for this long
you know so it’s not like it’s something that I was able to manage and it wasn’t
until the last three months that I realized how connected my brain is to
everything that I eat, drink, take, either through medication or supplements…which
thank God I’m not on any medications now except for Benadryl every once in awhile. So to
make a long story short, what’s interesting is that it took ten ER
visits and nine doctors to find out that I was iron deficient. Severely iron deficient.
The symptoms that many medical professionals look for in iron
deficiency anemia and iron deficiency in general, are not the symptoms that I
exhibited. What I exhibited the ten times I went to the ER and the nine times that
I went to specialists were mostly mental symptoms. I was presenting a lot of
stomach symptoms. Incoherent speech. Memory problems. Problems explaining what was going on so a lot of times I would bring a list of what I was experiencing
during that time. I would I would write it down while I was at home, freaking out,
and I would bring it to the ER with me or to the doctor and I would give them
the list just so I could remember the progression of symptoms that was
happening because there were just too many. I was talking about symptoms that
involved the brain. Symptoms that were going on behind my eyes. Severe head
pressure and paralysis of my jaw. Paralysis of the neck. Took me going to an
oncologist, a cancer doctor, to find out that my ferritin levels were at a six if
I had gone any longer probably even few days longer it would have warranted
blood transfusions. If I went to a Rheumatologist before I found that out,
I might have been diagnosed with several different autoimmune
diseases and not gone to the root of the problem. This experience
absolutely changed me. I am not the person that you knew three months ago.
I now see life in a way that every day counts. Every moment counts. Every thought, every action. And I’m not talking about when someone is sick, alright? Those that deal with autoimmune conditions or diseases that you manage, and your thoughts are affected by..that’s not what I’m talking about. What I’m talking about is the conscious decision and realization after this experience that I am so freaking lucky. I am so grateful to be alive right now. To be able to tell you this story.

3 Comments

  • Grand Pa says:

    We missed you!๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’š๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•๐Ÿ’•

  • Grand Pa says:

    See you tonight at 9.๐Ÿ˜˜

  • Jarod ORla says:

    Much more respect for u after listening to your courageous journey, so glad you are ok. Will you write a song out of your experience?

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