Starting DUPIXENT (Dupilumab) ECZEMA, ALLERGY, ASTHMA CURE. Clear Skin. Eye Side Effects | Ep.119

Hey! Made it up to Utah first medical
trip in just about a year wait okay now from the beginning we here at the University of Utah
Medical Center for my first appointment let’s continue with the story where I
left off. Luckily after the Nucala fail, the actual cure that I’ve been
waiting for called Dupilumab that finally became available the FDA
approved I just I guess a couple couple days after I stopped Nucala even
though I had to go through some trouble getting that getting Dupilumab right
away that I mean it turned out that I was able to get a pretty pretty fast so
by May of 2017 I was able to start the Dupilumab and if you guys have been
following my health videos you’ll remember that do pill map is the
so-called cure that I’ve been waiting for the reason I even tried new Kalla
was because I thought I had to wait another two or three years for you pull
them out to be FDA approved it was still in clinical trials and even though it’s
doing very well it was getting pushed grew pretty quickly nobody thought a
medication would be approved that quickly after clinical trials so that’s
why I started to call it but luckily Dupilumab was available in on the market
by last March or April and then I was able to get it around May so Dupilumab
is a injection that usually gave yourself but I kind of was stout and
just have the nurse show me how to do the injections the first time so the
very first treatment you do two injections and then after that you’re
supposed to one injection every two weeks so after the first treatment which
is the two injections things went surprisingly well I never had skin that
smooth within just a couple days and then there was a while in there where my
skin turned quite red and it was peeling quite a bit it felt pretty pretty warm
but what it actually happened was Dupilumab was healing my skin and
that’s kind of what it’s designed to do it’s designed for people with severe
eczema almost 12 hours since I my first Dupilumab shot I actually think it’s
working my asthma has loosened up overall feeling pretty good and aside
from the problem areas around my forehead and my cheek bones are still
pretty crunchy and pilly another layer all the other parts of my skin like
these clean parts and over here and all around my neck just basically anything I
can I can touch the skin has softened up and lotted it don’t mean almost feels
like soft baby soft baby skin I didn’t notice that I’m getting a lot of red
blotches on my face and some on my neck yeah faces getting more red you know and
these parts where it was pretty clear this morning until it’s uh it’s pretty
red now within I would say about a week or so
it had peel through a couple layers of skin and
was underneath was perfectly healthy skin I never felt skin this soft and
normal usually people with eczema and other skin problems we have pretty thick
and rough you know scaly reptilian like skin or just kind of feels like you’re
wearing a rubber suit but with Dupilumab after shedding off that
couple layers of damaged skin my skin felt like somebody else’s skin felt like
any other normal person’s skin with soft textures and a good balance in it so it
was literally a miracle but but as with every story there’s always a twist
pretty soon after I think the second injection my eye started swelling up my
eyelids so upper and lower eyelids started swelling up and then even on the
left eye right here it would break out and start getting some kind of skin
infection so I got these eye problems and went to the ophthalmologist and we
tried several different steroids and eye creams and eye drops
none of them worked which not a surprise for me like nothing not much doesn’t
work on my body so you know I was struggling whether I should give up the
pillow map or not but a Dupilumab was just doing such an amazing job with my
skin that I just couldn’t give it up so my dermatologist and I talked about how
we can adjust when I give myself the injection so kind of spread it out to
every third week instead of every two weeks or every fourth week my eyelids
are more swollen and continuing to continue as well since starting Dupilumab and the eyelids we just thought maybe we delay the next
injection for a week because since the pill map is so new even though they
suggest that you give yourself injections every two weeks and that’s
kind of like the standard it’s not optimal for everybody hasn’t been
optimized because it just hasn’t been that many people who’ve used it and they
haven’t collected enough data to know exactly how much of that medication
somebody should give themself depending on their personal conditions so I just
said it adjusted it over a couple of until I got to about every five weeks an
injection and surprisingly my skin was still doing very well even though the
injections were so far spread apart and I’m getting less of the medication and
if I gave myself the injection every two weeks so if I give myself the geomap
injects every five weeks instead of every two weeks the eye swelling
situation kind of kind of stopped my eyes are still much smaller than they
were before maybe like 40% smaller so I looked quite a bit more Asian but now I
can see clearly and my eyes aren’t watery in there there aren’t puffy and
red all the time as when I gave myself the injections every two weeks so it’s a
good compromise and my skin continues to do very well I guess even just in the
first like three or four weeks of using Dupilumab my skin because my skin
healed up so much that the rest of my body was able to heal as well so I
gained a lot of weight because before I was so malnutrition and I would lose a
lot of mass and moisture just because my skin peeled so much that I just couldn’t
ever gain weight so I was very underweight at about 120 pounds and
within a couple weeks after starting to peel my butt was up to 150 pounds and
just kind of stopped there which is about the normal way that’s
150 pounds is about the target that my doctors and I have had for me for a long
time we just couldn’t get enough nutrition and stabilize my condition
long enough for that to happen and but as soon as I started to pill map
I easily hit that mark so Dupilumab definitely has been the miracle even
though it hasn’t been the cure that I was hoping for but it’s by far the most
effective and helpful treatment that I’ve tried ever and it hasn’t had any
bad side effects other than with the eye swelling but you know just by spreading
out my injections every five weeks it’s been manageable so feeling so good about
that and just kind of allowing my body to heal you

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