פסוריאזיס – השגרה היומית שלי

פסוריאזיס – השגרה היומית שלי


October 29 is World Psoriasis Day As someone who has it themselves Two years ago I made a kind of educational video All about what this disease is and how to treat it And a little about my personal story What the hell is psoriasis? This time, in honor of the awareness day, I decided I wanted to focus A little less on the dry information, and a little more on the coping methods Psoriasis is a chronic disease, which means that… You can never really be cured from it Dealing with it is everyday And this time I really wanted to share with you my routine The things I constantly have to do “behind the scenes” And I’m not doing this to complain or anything But just so you understand What psoriasis patients have to deal with on a daily basis And before that, just to be clear I do not speak on behalf of all psoriasis patients I am just an example, and I represent only myself First off – showers! My life kind of revolves around the showers I need to plan my showers in advance Because there’s a specific procedure for doing them I’m most comfortable showering in the morning So that all the preparations I have to do, I’m doing the night before Currently, I have some psoriasis on my body, and some on my scalp So the night before I do two things The first thing I do is take care of the body lesions On the lesions I apply this ointment Which is very oily and sticky So I also make sure that while I’m sleeping I don’t stain my bedclothes The second thing I do is put something on my scalp Sometimes I just put moisturizing cream And sometimes I put this gel Which has steroids in it, so I’m careful with it After all this, when I smeared in all kinds of Oily and sticky stuff, I go to bed The next morning, I get up and shower My shower normally takes about 45 minutes And if you think it’s a lot Let me just explain to you why that is My showers come in stages At first I wash my hair with a “normal” shampoo Just to clean the… Whatever it was that I put on my scalp the day before And I wash it off In the second stage I put on my favorite and lovely shampoo Yes, the one that doesn’t stand on its top And that makes me very angry, the fact that it doesn’t stand on its top And I leave it on my hair for a bit to let it do its job On the third stage I use regular soap or the same shampoo And shave if it’s the season In the fourth stage, and forgive me for the details I itch my scalp And scrape off the dandruff that was softened from the shampoo, and wash the hair And the fifth and final stage, I put conditioner on my hair Because this thing’s conditioner is really bad And I wash my hair for the last time After I was finish my shower and I dry off I put massive amounts of moisturizer On all of my body I put a gentle moisturizer And on the psoriasis parts I put on a moisturizer that can be obtained only with a prescription Later, after my hair is already dry I take my cool ultraviolet comb And I do a phototherapy treatment on my scalp and my protruding lesions Basically, this concludes, for now My daily psoriasis routine I know my current situation is considered Really good for psoriasis patients And I myself was in much worse situations in my life So really… Like… I have nothing to complain about My condition might get worse in the future I might need to go back to Tel Hashomer to do phototherapy treatments Or try new treatments for me And my condition might actually improve I might not need to use ointments Or do any phototherapy treatment But what’s for sure, is that this psoriasis… Is going to stay with me forever And I can’t really complain about this Because… it’s a part of me It’s been a part of me for almost 20 years It will continue to be a part of me And I’d rather worry about things I can change So instead of worrying about it, and feeling sorry for psoriasis patients I want you to remember the one important thing on this Psoriasis Day: Psoriasis is not contagious! [in the background: The song “All The Pretty Girls” by The Darkness]

7 Comments

  • Allen Bar says:

    גם אני סובל מהמחלה מגיל 15 בערך. היום אני בן 25.
    חופף עם אותו השמפו ומזדהה עם המצב שלך.
    .קיצר – מחלה חרא, ולא אסתטית
    הבאסה שזה מתפשט לי בזמן האחרון ואני לא יכול לעשות שום דבר בנידון!!! אוכל את עצמי מבפנים!!

  • Abi Dubs Prodection says:

    גם לי יש פסוריאזיס והרופא אמר לי שכדי לי לעשות טיפול פוטוטרפי אני דיי בלחץ מזה כי זאת קרינה אחרי הכל ואני חוששת שזה אולי יוביל לסרטן וחוץ מזה אני די חוששת מזה שאני אשכח לשים משקפי מגן או יוריד אותם לפני שיגידו לי

  • ח'ליל מוראד says:

    איך אפשר להשיג מכשיר פוטותרפיה פרטי?

  • תאיר הלפרט says:

    גם לי יש פסוראיאזיס ואמא שלי מצאה דרך ליפתור את זה סוג של בעצם יש בדג ויטמינים מסוימים שעוזרים לי הפסוראיאזיס גרם לחתכים ולקטעים שרציתי ליקרות לעצמי את הרגל

  • Moshe Gabay says:

    את אלופה 👍🏻💪🏻🙏🏻❤️

  • Moshe Gabay says:

    אין לך מושג כמה את חזקה
    ומעניקה כח ותקווה לכל חוליי הפסוריאזיס ❤️💪🏻👍🏻🙏🏻

  • Nati Hagag says:

    מאיפה רכשת את המברשת ?

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